Welcome to the BSS Dedicated Paediatric Sleep Webpage
The mere existence of this specific webpage, along with the exciting development and ratification of the SPARDIC guidelines, shows that Paediatric Sleep Medicine is no longer a ‘cinderalla specialty’ in the UK. News that follows about plans for peer review and video-conferencing shows that Paediatric Sleep Medicine might even be ahead of the game!
RCPCH Working Party on Sleep Physiology and Respiratory Control Disorders in Childhood
The long-awaited SPARDIC document is finally ready and accredited. It’s available on the RCPCH website. Congratulations to all those involved in this superb document that will be of huge value to a range of people including parents, primary and secondary care physicians, surgeons and health service managers.
Rob Primhak is taking forward one recommendation from SPARDIC ‘the establishment of some sort of quality assurance in paediatric sleep services.’
He writes ‘Most of us are working with a feeling of isolation and would benefit from peer review and support, and in the first instance this is the way we would like to go.’ He has set out a two way peer review process, and if you are interested please email him for a proforma to complete and be allocated a centres to visit and be visited by.
David Kilner and Rod Lane have also taken on the challenge of recruiting and training up health care assistants to work with paediatric sleep technologists at Great Ormond Street Hospital. This has required training programmes and competency/operational policy documents to be developed or adapted.
At the Evelina Children’s Hospital a similar process has taken place with Jane Orgill and Mat Blackstone, paediatric sleep technologists, training up 6 band 6 neurology nurses on core competencies to be able to attend full PSG (sometimes with extended montage EEG) overnight studies.
Don Urquart is leading the way on an exciting initiative for a UK-wide videoconference circuit for paediatric sleep medicine. So far he proposes a 1 hour time slot at a monthly fixed time. This is hoping to kick-off in February or March, but more details later. Please email Don if you are interested.
James Di Pasquale has proposed restarting the informal paediatric network that previously existed within the BSS for communicating clinical problems/ideas together. Over time he’ll be thinking about whether webpages/webforums/emails/or videoconference work best-or whether we need all of them.
In the meantime we have been promised a large paediatric section in the next BSS newsletter where all the above authors will be able to write about their plans and work in more detail.